Advancing
MEF2C
Therapeutics
We are on a mission to find the first-ever drug to tackle MEF2C deficiency. Join us.
rare bird (noun):
an exceptional person or thing; a rarity
$1.1m Grant from Rare Bird Funds First Longitudinal Natural History Study for MCHS
The Volare Study marks a historic global commitment
from the MEF2C community to chart the course of
MCHS and prepare for clinical trial.
Rare Bird Foundation X Weill Cornell Medical Center (NY) X
Weill Cornell Medical Center (Doha) X Sidra Hospital (Doha) X
MEF2C Foundation (UK) X MEF2C Foundation (Australia) X
MEF2C Hilfsorganisation (Germany)
JOIN THE MOVEMENT. CHANGE HISTORY.
The Rare Bird Foundation is a U.S.-based organization dedicated to advancing and promulgating research that improves the understanding and development of therapeutics for MEF2C Haploinsufficiency Syndrome (MCHS), a rare neurodevelopmental disease that affects 350 children and young adults worldwide.
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Funding the future
Our team is the largest single funder of MEF2C-focused research and therapeutic development. Email us to join the effort.